Hello everyone, it's big brother Aaron. On behalf of my mother I extend an apology to all of you who saw the previous post with just a title. My mother was going to write in it last night but did not want to re-create her day in her mind as it was a very difficult one to bear emotionally and mentally.
Yesterday was a particularly hard day for Myles as he saw for the first time his own body during his bandage change. Usually he is laying down looking at the ceiling, but yesterday they did it with him sitting up. Needless to say he was traumatized at seeing the extent of his burns in their entirety even though to us who have been there with him they look better. In addition to that, his nerves are growing back and there is additional acute pain while going through the bandage changes.
In addition to that there are still concerns over his hemophilia, the blood clots and the relation of his recovery considering both of these things. The burn center is fantastic at what they are doing for his burns, but we are now getting additional resources to make sure he is getting the best care in his recuperation in regards to his hemophilia.
As I am sure it is the same with all of you, I continue to pray and send positive thoughts his way as much as I can. What is already an excruciating time for our family is still being complicated by the difficulties life is giving us. All of your prayers and support are helping us each and every day. We thank you from the bottom of our hearts and only ask that you continue with giving what you already so willingly are- love, hope and spirit.
-Aaron
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11 comments:
hey myles i just wanted to let u know at my moms work we're havin a bake sale for u and we hope to raise a hole bunch of money for u and i hope u get better i look at ur blog every day and hope u come home soon call me sometime.
Dave
Myles, Sherry, Aaron and Eugene,
I just got back from church and I had everyone praying for you. The other day I wrote in your blog the words to one of my favorite songs, All in All, well we sang it in church today. There is a sign.
The good Lord is with you all to lift you up when you are down. Trust in the Lord.
I pray that the doctors from CA and Idaho can get you back on your feet again. May God be with you all.
We love you,
Cecelia, Dave, Brian and Marie
He Is Your God
Monday, March 12, 2007
“I am God and not a human; I am the Holy One, and I am among you.” Hosea 11:9
Before you read any further, reflect on those last four words, “I am among you.” Do you believe that? Do you believe God is near? He wants you to. He wants you to know he is in the midst of your world. Wherever you are as you read these words, he is present. In your car. On the plane. In your office, your bedroom, your den. He’s near.
God is in the thick of things in your world. He has not taken up residence in a distant galaxy. He has not removed himself from history. He has not chosen to seclude himself on a throne in an incandescent castle.
He has drawn near. He has involved himself in the carpools, heartbreaks, and funeral homes of our day. He is as near to us on Monday as on Sunday. In the schoolroom as in the sanctuary. At the coffee break as much as the communion table.
Dear Sherry, Myles and Aaron,
He is near! AND he wants very much for you to have the faith to believe it. God asks us to have the faith of a mustard seed. Myles, have you ever seen a mustard seed? It's small . . . but a seed grows and grows! Remember, without faith, it's impossible to please Him! He's with you . . . always,
You all are loved,
Kate, Dwayne, Scott and Kaitlin
Myles & Sherry,
Well Sherry I am Glad that you heard the robin sing, hopefully that is a good sign that he is past all the crap that that is going on. I bet he was traumatized when he seen himself, It will take sometime to get use to your new looks. Myles I am glad to see you doing better and your pic. looks good for you ! That will be cool if you get to run around the place in a wheel chair and see the sights. I think that your strong mind and good spirit will prevail even more now that you get to mover around. It was a beautiful week end got some fishing in and did alot of yard work. Well you guys take care and we will keep in touch. Randy& Kim
Uncle Myles here checking in. I'm sorry it's such a rollercoaster fo a healing process. Myles you have just got to be srong on this. I tried to send a messege yesturday and my password faild, I think I have this blog thing figured out. Sherry, It was nice to hear you got some good rest. You need more of that because a happy and rested mother makes children happy and at ease. Please get more rest and Myles keep the strenght. Love, Uncle Myles
Hey myles,
it's me bonnie. Everyone here is still praying their butts off and hoping that you get better soon. We all love you Myles and don't know what we sould do without you. Just to tell you, Taylor got in trouble again. She yelled at her mom yesterday and now has to do a whole bunch of chores. Hope you get better soon!
hay its deirdre {cusin} just want to tough bace with all ya all.
how are you?
and whats up?
i just want to let you know that last night i said a prare for you myles. and i have not praed like that in a long while. it was just about how im ganna see you on your birthday. and see you. how we can hang out and talk about our wonderful lives. and all that girly stuff!
♥ Deirdre ♥
Hey Myles,
Im sorry to hear about your bad day yesterday. I can only imagine that it was difficult for you in so many diffrent ways.
I can only imagine that you are bummed out. I dont really know what to say,except this. Your shell is just that..and i hope that someday you will truly see that it doesnt matter nearly as much as you may think it does now. The kid you are now and man that you will become far outshines any scar you may end up with.
hang in there bud.
all my love,
kelle
Hey my little man,
That's what I call Brian.
I am going to bed now, I have spent the evening working with Brian on his science fair project that is due on Thurs. Stains vs Detergents. Sherry, Arm & Hammer works the best and is the least expensive detergent.
We have been praying all day for you all. We hope the doctors were able to come up with a solution to take care of your clots. We also have ben praying that you are healing on the outside as well as the inside. Sherry, Aaron, and Eugene, we too are praying that you have Gods guidence to help Myles with the strength he needs to get through on a daily basis.
We love you all,
Cecelia, Dave, Brian, and Marie
Hi Myles
I have to check your picture with that hairdo every day. I like it a lot!
I am sorry to hear things are rough, I am telling all my frieds at pre-school about you and pray for you every day.
Time for me to go to bed, so have Good Night's rest and don't let the bedbugs bite.
Love
Priscilla
Sherry, Dee from Costa Mesa here, wish I could be there to give you a big hug and let you cry on my shoulder for a long time. I love you, my heart is heavy too.
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