I think Myles has him beat!

Myles met and spent a lot of time with Matt Damon at a fund raiser for Hemophilia five years ago in California. It is so strange to me now to see Myles' arms and hands without the burns.

I think buggies is cuter don't you?

Thankfulness

I have been pondering how I was going to feel about Thanksgiving this year. This year, it sounds like such a short time for all that has happened. I have come to realize that I am truly more thankful this year than any of my past years. What a revelation and a calmness to the pain and scars that this year has left. I would like to share what I am truly thankful for:

Myles is alive.

My sister Sue is in Gods arms and her pain is gone.

The acknowlegement of how amazing the power of prayer is.

That through pain and suffering we grow and truly appreciate lifes every moment.

That my FAMILY is larger than just my two sons.

That things truly do happen for a reason that we may not ever understand but faith will help you accept that fact.

How love can help you bear all burdens.

That my family has become stronger, closer, and wiser.

That when you think that you have no more strength left, God gives you a shoulder to lean on, her name is Mona.

For all of the wonderful people who went through this with us, you shared our pain, sorrows, milestones, triumphs, and gave us strength. THANK YOU!

This Thanksgiving, from our family, is for all of you.

The sunrise pictures where from this morning at my house.

Halloween

Myles thought that this would be an appropriate costume this year. Things are going well but we might have to have another surgery to implant a port in Myles. His hemophilia is really acting up lately maybe due to the fact that he is growing so fast. It took me eleven needles sticks to secure a vein in him the other day for an ankle bleed. It's so hard to find veins through his grafts. Will keep you posted.

With love.............