Monday, December 8, 2008
Hard to breathe
There are things that you think you are over...then you realize that you have just stuck them very deep in your soul for safe keeping. Something happens, you see that boyfriend that you really thought you would spend the rest of your life with, that song on the radio that takes you back to a special moment in time that you have forgotten about, the spider webs that you only saw when you were hugging the one that you love. There are other things that you forgot. The smell of the intensive care unit, the monitors of a heart that you can't live without, the wish that your own son would go to his creator rather than deal with the living hell he is given even knowing that you will die without him. It's unbelievable what can trigger these memories ,but when it happens, you have to surrender to them, as nothing will break them from your soul.
Thursday, November 20, 2008
Saturday, November 8, 2008
Tuesday, November 4, 2008
Sunday, October 5, 2008
Autumn


Saturday, September 20, 2008
Sunday, August 31, 2008
Scars, What scars?




Ok, my mom is done with the proud stuff,
High School is crazy, it's busy, and really nice to be around my friends again. I am still trying to figure it all out. Love to all,
Myles and Sherry
Thursday, August 14, 2008
Hemophilia Camp 2008










Hey everybody, this is Myles. Hemophilia camp was awesome. I met lots of new friends with hemophilia and cancer survivors. The rapids were really fun and I flipped my kayak over many many times. Spending time with my brother was really fun and he needed it. It was nice to see him away from the stress of work and just life. I definitely want to go back with Aaron next year because my mom is boring (lol)! The rafting trip was on the Salmon River in Idaho and was very pretty. The water wasn't as cold as the Green River in Utah but it was enough to make you very cold. You can tell that the kids that survived burns are tougher than the kids with hemophilia but each one feels a different pain (I've felt them both!).
Pretty excited about starting High School, it should be fun being with my friends again. I hope that I don't get "bullied" up too much. I'm sure that Aaron will go to my school and fix things if I do. Can't wait for next summer to back to both of the camps.
Love to all, Myles
P.S. Aaron took over two hundred pictures on our trip and is making CD's for everyone. Here is a few of them.
Saturday, August 9, 2008
Only to Witness
Myles and Aaron are at the hemophilia camp. They are rafting down the Salmon river with a forecast of large hail, rain, and gusty winds. WHAT A GREAT MEMORY FOR MY SONS! I have time to think when buggies is gone. Time to think of how much I love him, time to think about who he is, time to think of my role as his mother. I have realized that I am only a witness to Myles' life, a person in the audience to witness the play. Most parents feel that they are the directors of their childrens life. It is their job to direct and guide their childs role in this life. I have always felt this way to, until now. Myles has a direction in life that really has nothing to do with me. Yes, I am there to love, comfort, inspire him, but who he is seems to come from somewhere deep inside him. I can only stand back and watch. It is way beyond anything that I can contribute to. He has always had this direction, but I think that facing death as many times as he has, it has grown. It's really hard to explain. His presence to anyone who is near him brings about a comfort of life, a sweet and gentle unspoken reason for life and living. He knows something that most of us don't, but he doesn't know what he knows, it's just in his soul that he can't explain. I witness it daily, old, young, affluent, and poor, they all feel something when they meet him. I have relinqished this duty of mine, and I will just witness and learn. Sometimes that is the only thing to do and I am SO honored.
And a woman who held a babe against her bosom said, "Speak to us of
Children."
And he said:
Your children are not your children.
They are the sons and daughters of Life's longing for itself.
They come through you but not from you,
And though they are with you, yet they belong not to you.
You may give them your love but not your thoughts.
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow, which you cannot visit,
not even in your dreams.
You may strive to be like them, but seek not to make them like you.
For life goes not backward nor tarries with yesterday.
You are the bows from which your children as living arrows are sent forth.
The archer sees the mark upon the path of the infinite, and He bends you
with His might that His arrows may go swift and far.
Let your bending in the archer's hand be for gladness;
For even as he loves the arrow that flies, so He loves also the bow that
is stable.
-- Kahlil Gibran
And a woman who held a babe against her bosom said, "Speak to us of
Children."
And he said:
Your children are not your children.
They are the sons and daughters of Life's longing for itself.
They come through you but not from you,
And though they are with you, yet they belong not to you.
You may give them your love but not your thoughts.
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow, which you cannot visit,
not even in your dreams.
You may strive to be like them, but seek not to make them like you.
For life goes not backward nor tarries with yesterday.
You are the bows from which your children as living arrows are sent forth.
The archer sees the mark upon the path of the infinite, and He bends you
with His might that His arrows may go swift and far.
Let your bending in the archer's hand be for gladness;
For even as he loves the arrow that flies, so He loves also the bow that
is stable.
-- Kahlil Gibran
Sunday, July 27, 2008
Great Weekend
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Just got back from swimming and a BBQ at Aarons. We had a great time. I love watching my two guys swimming in the pool and playing, they SO love each other. Life has definitely settled down and feels back to normal. We infused Myles through his port and it worked wonderfully, no more multiple needlesticks and hour after hour of frustration, YEAH!!!! Myles and Aaron are going to Idaho's hemophilia camp in a few weeks on the Salmon River over by Yellowstone. What great bonding for them (as if they need anymore). I love my sons so much it's almost surreal. I picked some veggies to bring to Aaron's, nothing like fresh picked for dinner. All is good!
Monday, July 21, 2008
Friday, July 18, 2008
My Help




Tuesday, July 15, 2008
Saturday, July 12, 2008
Opening Day
OMG! (as Deirdre would say, LOL) we had so much fun today. We opened our vegetable stand and had about fifty people show up. I made 20# of pulled pork for sandwiches with my infamous Amish Coleslaw. Lots of fun meeting new neighbors who seem to be excited about what we are doing. I have never seen the look of appreciation on buggies face like today. He has been helping me so much (with the exception of surgery), pulling weeds, staining the deck, picking and washing vegetables, he has been with me through it all. He got so much gratification of seeing people's faces on their excitement of it all. Aaron, Tuyet, and my sister Darlene, were all here. WHAT A GREAT DAY! We have veggies, farm fresh eggs, frozen bananas, Italian Ice Cream, what a loving neighborhood thing. People showed up on motorcycles, quad's, all kinds of stuff. There were actually people here today that met their neighbors for the first time. I LOVE THAT. Everyone around here knows the story of buggies, so when they saw him being a normal fourteen year old I think it filled their hearts. My heart was filled today also. Good day............
Monday, July 7, 2008
The Deck



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